While multiple myeloma can present many challenges, keep in mind that you do not need to cope with this diagnosis on your own. Your friends and family are important sources of strength and support. There are also many local and national support services available to assist you.

Here are some of the different types of resources available to you:

Medical information. Your oncologist, other doctors, and nurses are a great source of information about treatment options, pain and side effect management, and other medical concerns. There are also a great number of reputable organizations that provide trusted information on multiple myeloma and related issues (see sidebar). The libraries at cancer centers also stock up-to-date literature on these topics.

Emotional support. A multiple myeloma diagnosis can be overwhelming, making you feel sad, scared, or anxious. Individual counseling, face-to-face and online support groups, and patient-to-patient networks are available to help you cope emotionally. Ask your health care team or one of the organizations listed in the sidebar for recommendations. CancerCare provides free counseling and support groups led by professional oncology social workers.

Financial assistance. There are many organizations that provide help with medical billing, insurance coverage, and reimbursement issues. There is also financial assistance available to help people who cannot afford the cost of their medications. Good places to start your research are the websites of the Cancer Financial Assistance Coalition (www.cancerfac.org) and the Partnership for Prescription Assistance (www.pparx.org).

CancerCare’s fact sheet, “Sources of Financial Assistance,” provides more information about seeking financial help. Another resource is CancerCare’s A Helping Hand (www.cancercare.org/helpinghand). This is a searchable, online database of financial and practical assistance available for people with cancer. This comprehensive online tool features up-to-date contact information and descriptions for hundreds of national and regional organizations offering financial help to people with cancer. You can search by diagnosis, zip code and type of assistance.

Benefits and entitlements. Local and county government agencies can give you information on Social Security, state disability, Medicaid, income maintenance, the Low Income Heating Energy Assistance Program (LIHEAP), and food stamps. Check your local phone directory for listings.

Transportation help. The American Cancer Society’s Road to Recovery Program provides transportation to and from cancer centers for patients and their families. Your local and county governments may also offer low-cost transportation for people who qualify. Churches, synagogues, YMCAs, YWCAs, or fraternal orders may also have volunteers who can provide transportation.

Housing/lodging. The Hope Lodge of the American Cancer Society, the National Association of Hospital Hospitality Houses (www.nahhh.org), and other organizations provide temporary lodging for families of a patient who needs to travel far from their home for treatment. Joe’s House is a nonprofit organization that offers an online database with lodging information near cancer treatment centers across the U.S. To learn more, visit www.joeshouse.org.

Other practical assistance. People affected by multiple myeloma may feel overwhelmed by any number of other day-to-day concerns not covered in this fact sheet. Contact CancerCare or any of the other organizations listed in the sidebar to learn about additional recommended resources. To learn more about what is available in your community, you can also contact the National Association of Area Agencies on Aging (www.n4a.org) and United Way (www.unitedway.org).

Browse by Diagnosis

Browse by Topic

Thumbnail of the PDF version of Multiple Myeloma: Finding Resources and Support

Download a PDF(640 KB) of this publication.

This fact sheet was supported by an educational grant from Janssen Biotech, Inc., administered by Janssen Scientific Affairs, LLC., and from Millennium: The Takeda Oncology Company.

Last updated August 01, 2015

The information presented in this publication is provided for your general information only. It is not intended as medical advice and should not be relied upon as a substitute for consultations with qualified health professionals who are aware of your specific situation. We encourage you to take information and questions back to your individual health care provider as a way of creating a dialogue and partnership about your cancer and your treatment.

Back to Top
Terms of Use and Privacy Policy

By using our website, you agree to our recently updated Privacy Policy . Here you can read more about our use of cookies which help us make continuous improvements to our website. Privacy Policy.