Oncology social workers help you cope with the emotional and practical challenges of triple negative breast cancer. Contact us at 800‑813‑HOPE (4673) or email@example.com.
Learn more about counseling.
We’ve partnered with Susan G. Komen to offer a specialized breast care helpline. Call 877-GO KOMEN (877-465-6636). Looking for information about clinical trials? Call the Komen Breast Cancer Clinical Trial Information Helpline: 877-465-6636
CancerCare has also partnered with the Triple Negative Breast Cancer Foundation to assist and support women with triple-negative breast cancer. Call 877-880-TNBC (877-880-8622).
Learn more about how CancerCare Case Management can help you address barriers to care.
Find resources and support to manage your financial concerns. Limited assistance from CancerCare® is available to eligible families for cancer-related costs.
Connect with others in our free support groups led by oncology social workers.
- Breast Cancer Patient Support Group
- Breast Cancer Post-Treatment Survivorship Support GroupNew!
- Triple Negative Breast Cancer Caregiver Support GroupNew!
- Triple Negative Breast Cancer Patient Support Group
- Living with Cancer: Metastatic Breast Cancer Patient Support Group (New York, Video)
If you live in New York, New Jersey, or Connecticut, learn about and view the full calendar of our free community programs.
Connect Education Workshops
Listen in by telephone or online as leading experts in oncology provide up-to-date information about cancer-related issues in one-hour workshops. Podcasts are also available.
Triple Negative Breast Cancer
- Coping with Metastatic Triple Negative Breast Cancer, Oct 14, 2020
- Caregiving for Your Loved One Living with Metastatic Triple Negative Breast Cancer, Oct 28, 2020
- Updates from the San Antonio Breast Cancer Symposium (SABCS) on Triple Negative Breast Cancer (TNBC), Dec 15, 2020
- The Latest Developments Reported from the 43rd Annual San Antonio Breast Cancer Symposium (SABCS), Dec 16, 2020
- Updates on the Treatment of Estrogen Receptor (ER) Positive, Progesterone Receptor (PR) Positive & HER2 Positive Breast Cancer from the 43rd Annual San Antonio Breast Cancer Symposium (SABCS), Jan 13, 2021
- Preventing and Managing Infections in Adults Living with Cancer, Oct 26, 2020
- Caregiving for Your Loved One Living with Cancer, Nov 3, 2020
- Cancer and Flu Shots, Nov 9, 2020
- How Diagnostic Technologies and Biomarkers Improve Treatment Decisions for People Living with Cancer, Dec 7, 2020
Triple Negative Breast Cancer
- Highlights from the 2020 American Society of Clinical Oncology (ASCO) Annual Meeting: Unite and Conquer: Accelerating Progress Together, Jul 30, 2020
- The Benefits of Clinical Trials for Triple Negative Breast Cancer, Jun 17, 2020
- Triple Negative Breast Cancer and Fear of Recurrence, May 4, 2020
- Triple Negative Breast Cancer and African American Women, Apr 29, 2020
- What’s New in the Treatment of Breast Cancer for Women of All Ages, Jan 29, 2020
- Updates on the Treatment of Estrogen Receptor (ER) Positive, Progesterone Receptor (PR) Positive and HER2 Positive Breast Cancer from the 42nd Annual San Antonio Breast Cancer Symposium (SABCS), Jan 8, 2020
- The Latest Developments Reported at the 42nd Annual San Antonio Breast Cancer Symposium (SABCS), Dec 18, 2019
- Highlights from the 2019 American Society of Clinical Oncology (ASCO) Annual Meeting: Caring for Every Patient, Learning from Every Patient, Aug 22, 2019
- Coping with the Stresses of Caregiving When Your Loved One Has Triple Negative Breast Cancer, Jun 27, 2019
- Triple Negative Breast Cancer and Fear of Recurrence, Jun 24, 2019
- Update on Triple Negative Breast Cancer, Jun 12, 2019
- Triple Negative Breast Cancer and African American Women, Mar 20, 2019
- Breast Cancer and Younger Women, Jan 9, 2019
- The Latest Developments Reported at the 41st Annual San Antonio Breast Cancer Symposium (SABCS), Dec 12, 2018
- Coping with Metastatic Triple Negative Breast Cancer, Oct 23, 2018
- Living with Metastatic Breast Cancer, Oct 18, 2018
- The Benefits of Clinical Trials for Triple Negative Breast Cancer, Sep 26, 2018
- Breast Cancer and Older Women, May 16, 2018
- The Latest Developments Reported at the 40th Annual San Antonio Breast Cancer Symposium (SABCS), Apr 11, 2018
- Triple Negative Breast Cancer in the African American Community, Feb 28, 2018
- Update on Clinical Trials & Triple Negative Breast Cancer, Dec 20, 2017
- Coping with the Stresses of Caregiving When Your Loved One Has Triple Negative Breast Cancer, Nov 30, 2017
- Advances in the Treatment of Triple Negative Breast Cancer, Nov 29, 2017
- Highlights from the 2017 American Society of Clinical Oncology (ASCO) Annual Meeting, Sep 28, 2017
- Current Perspectives on Early Stage Breast Cancer, Jun 22, 2017
- Managing the Cost of Living with Cancer, Sep 23, 2020
- Veterans Living with Cancer, Jun 26, 2020
- Treatment Adherence: Taking Your Pills on Schedule – Why It Is So Important, Jun 24, 2020
- Understanding Diagnostic Technologies and Biomarkers, Jun 22, 2020
- What are Biosimilars? Understanding Their Role in Cancer Treatment: Current and Future Perspectives, Jun 18, 2020
- Current Perspectives in Cancer Survivorship, Jun 16, 2020
- The New Coronavirus (COVID-19): Emerging Guidelines for People Living & Coping with Cancer, Jun 15, 2020
- Managing the Side Effects of Immunotherapy, May 6, 2020
- Understanding the Role of Immunotherapy in Treating Cancer, Apr 29, 2020
- For Caregivers: Care Coordination for Your Loved One Living with Cancer and Other Health Problems, Apr 22, 2020
- The New Coronavirus (COVID-19): Updated Guidelines for People Coping with Cancer, Apr 20, 2020
- Caregiving for Your Loved One with Cancer, Apr 14, 2020
- Participating in Decisions about Your Care, Apr 8, 2020
- The New Coronavirus (COVID-19): Guidelines for People Coping with Cancer, Mar 30, 2020
- Cancer and The Workplace: Understanding Your Legal Protections, Mar 25, 2020
- New Perspectives in Clinical Trial Research, Mar 20, 2020
- Understanding the Costs of Care and Your Health Care Coverage, Mar 18, 2020
- Trends in Oncology and Treatment Planning: What You Need to Know, Mar 4, 2020
- Managing Eye and Vision Changes Related to Cancer Treatments, Mar 2, 2020
- Taking Your Treatment on Schedule: Its Importance in Managing Cancer, Feb 26, 2020
- Care for Your Bones During & After Cancer Treatment: Tips to Improve Bone Health, Nov 18, 2019
- Preventing Chemotherapy Induced Nausea and Vomiting, Oct 28, 2019
- Participating in Decisions about Your Care, Jun 19, 2019
- New Trends in Cancer Survivorship, Jun 18, 2019
- For Caregivers: Care Coordination for Your Loved One Living with Cancer and Other Health Problems, Jun 17, 2019
- Understanding the Costs of Care and Your Health Care Coverage, Jun 12, 2019
- Update on Clinical Trials: How They Work, Jun 10, 2019
- Cancer and the Workplace: Understanding Your Legal Protections, May 29, 2019
- Trends in Oncology and Treatment Planning: What You Need to Know, May 22, 2019
- Managing the Side Effects of Immunotherapy, May 15, 2019
- Understanding the Role of Immunotherapy in Treating Cancer, Apr 17, 2019
- Managing Eye and Vision Changes Related to Cancer Treatments, Apr 15, 2019
- Joys and Challenges of Pets in Your Home When You Have Cancer, Apr 8, 2019
- Taking Your Pills on Schedule: Its Importance in Treating Cancer, Apr 3, 2019
- Caregiving for Your Loved One with Cancer, Mar 19, 2019
- Life with Graft vs. Host Disease (GVHD) Post Allogeneic Stem Cell or Bone Marrow Transplantation: New Treatment Approaches, Dec 13, 2018
- Current Perspectives on Cancer Survivorship, Dec 11, 2018
- Genomics and the Future of Cancer Treatment, Oct 15, 2018
- Genomics and Genetics: What is the Difference?, Jun 25, 2018
- Update on CAR-T Cell Therapy, Jun 25, 2018
- Treatment-Related Rash and Dry Skin, Jun 20, 2018
- Current Perspectives on Cancer Survivorship, Jun 19, 2018
- What Are Biosimilars? Understanding Their Role in Cancer Treatments: Current and Future Perspectives, May 24, 2018
- Managing the Side Effects of Immunotherapy, May 2, 2018
- Understanding the Role of Immunotherapy in Treating Cancer, Apr 25, 2018
- Taking Your Pills on Schedule: Why It Is So Important in Managing Cancer, Apr 18, 2018
- Preventing Chemotherapy Induced Nausea and Vomiting, Apr 16, 2018
- Managing Eye and Vision Changes Related to Cancer Treatments, Feb 26, 2018
- Mind Body Techniques to Cope with the Stresses of Cancer, Nov 15, 2017
- What Are Generic Drugs: Understanding Their Role in Cancer Treatment, Jun 29, 2017
- For Caregivers: Care Coordination for Your Loved One Living with Cancer and Other Health Problems, Jun 14, 2017
- Taking Your Pills on Schedule: The Importance of Adherence in the Treatment of Cancer, Jun 14, 2017
- Participating in Decisions about Your Care, Jun 7, 2017
- Cancer and the Workplace: Understanding Your Legal Protections, May 24, 2017
- Preventing Chemotherapy Induced Nausea and Vomiting, May 22, 2017
- Trends in Oncology and Treatment Planning: What You Need to Know, May 3, 2017
- Managing the Side Effects of Immunotherapy, Mar 15, 2017
- Living with Cancer Throughout The Cancer Journey, Mar 10, 2017
- Understanding the Role of Immunotherapy in Treating Cancer, Mar 8, 2017
- Managing Eye and Vision Changes Related to Cancer Treatments, Mar 6, 2017
- What Are Biosimilars? Understanding Their Role in Cancer Treatment: Current and Future Perspectives, Feb 1, 2017
- Managing Sensory Disruptions During Cancer Treatments, Dec 5, 2016
- For Health Care Professionals: Care Coordination for Older Men Living with Cancer, Aug 23, 2016
- Precision Medicine in Cancer Treatment, Jun 29, 2016
- Managing the Costs of Living with Cancer, Jun 8, 2016
- Advances in Treating Chemotherapy Induced Nausea and Vomiting, May 23, 2016
- Taking Your Pills on Schedule – Why It Is So Important in Managing Cancer, Feb 10, 2016
- Nutrition and Healthy Eating Tips During and After Cancer Treatments, Feb 1, 2016
- Cancer and the Workplace: Knowing Your Legal Rights, Dec 10, 2015
- What’s New in Managing Blood Clots During Cancer Treatments, Oct 30, 2015
- For Health Care Professionals: Care Coordination for Older Men Living with Cancer, Jul 14, 2015
- Understanding Diagnostic Technologies and Biomarkers, May 6, 2015
- Healthy Eating and Managing Weight Changes During Cancer Treatment, Apr 13, 2015
- Managing the Costs of Living with Cancer, Feb 4, 2015
- For Caregivers: Practical Tips to Cope, Nov 14, 2014
- Highlights of the Affordable Care Act, Nov 11, 2014
- Managing Cancer Pain: What You Need to Know, Mar 21, 2014
- Understanding Chemotherapy-Induced Neutropenia: Low White Blood Cell Counts, Feb 21, 2014
- Cancer and the Workplace, Feb 6, 2014
- Advances in Treating Chemotherapy-Related Nausea and Vomiting, Jan 24, 2014
- Young Adult Survivorship: Fertility, Sexuality and Intimacy, Jun 28, 2013
- Understanding the Affordable Care Act (ACA) for People Living with Cancer, Dec 12, 2012
- Helping Cancer Patients and Their Families Cope with the Stresses of Caregiving, Dec 6, 2012
- Managing Post-Treatment Neuropathy, Jul 17, 2012
- Stress Management for Caregivers: Practical Tips to Cope, Jun 29, 2012
- Changing Roles and Responsibilities for Caregivers, Jun 19, 2012
- Recapturing Joy and Finding Meaning, May 15, 2012
- Planning Your Comfort and Care at End of Life, May 10, 2012
- Using Mind/Body Techniques to Cope with the Stress of Survivorship, Apr 24, 2012
- Nutrition, Physical Activity and You: A Guide for People Living With Cancer, Nov 15, 2011
- Understanding the Important Role of Adherence in the Medical Management of Cancer, Sep 21, 2011
- Fear of Recurrence and Late Effects: Living with Uncertainty, Jul 12, 2011
- Money Matters: Finding Resources to Manage Cancer Treatment Costs, Jun 22, 2011
- Stress Management for Caregivers: Taking Care of Yourself Physically and Emotionally, Jun 14, 2011
- The Challenges of Coping with Cancer and Other Health Problems, Jun 1, 2011
- Weight Changes After Cancer Treatment: Why is it Happening and What Can I Do About It, May 10, 2011
- Mouth Pain and Discomfort: All You Need to Know About Mouth Sores and Oral Mucositis, Apr 27, 2011
- Helping Children and Teens Understand When a Parent or Loved One Has Cancer, Apr 20, 2011
- Chemobrain: The Impact of Cancer Treatments on Memory, Thinking and Attention, Apr 12, 2011
- Survivors Too: Communicating With and Among Family, Friends and Loved Ones, Jul 13, 2010
- Survivorship and Workplace Transitions, Jun 22, 2010
- Communicating with Your Health Care Team After Treatment: Making the Most of Your Visit, May 18, 2010
- Trouble Sleeping? Sleep Better to Feel Better: Tips You Can Use, Apr 13, 2010
- Helping Teachers and Educators Support Siblings of Children with Cancer, Oct 8, 2009
- Understanding Peripheral Neuropathy, Jul 16, 2009
- Survivors Too: Family, Friends and Loved Ones - Managing the Fatigue of Caregiving, Jun 23, 2009
- The Importance of Nutrition and Physical Activity, May 19, 2009
- For Parents, Caregivers and Professionals: Helping Brothers and Sisters of Children Living with Cancer, May 14, 2009
- Dental Health During Cancer Treatments, Apr 24, 2009
- Managing the Stress of Survivorship, Apr 14, 2009
- Medical Emergencies in Cancer Treatment, Apr 1, 2009
- Balancing Cancer and Careers: Living and Working with Cancer, Mar 12, 2009
- For Caregivers: Coping with Holidays, Special Occasions and Birthdays, Throughout the Year, Dec 12, 2008
- Survivors Too: Family, Friends and Loved Ones, Jun 24, 2008
- Rediscovering Intimacy in Your Relationships Following Treatment, May 13, 2008
- The Importance of Communicating with Your Doctor About Follow-Up Care, Apr 22, 2008
- Finding Hope and Meaning After Treatment, Jun 19, 2007
- My Treatment is Over: Why Do I Feel So Alone and Sad?, May 15, 2007
- Neuropathy and Joint Aches: New Post Treatment Challenges, Apr 17, 2007
- Managing Your Costs of Recovery, Jun 20, 2006
- Balancing Your Needs and Your Role as a Caregiver, Jun 13, 2006
- Is It My Cancer or Am I Getting Older?, May 23, 2006
- The Bereaved Caregiver in the Workplace, May 10, 2006
- Stress Management Tips for Survivors, Apr 25, 2006
- The Challenge of Creating Supportive Work Environments for Employees with Cancer and Their Caregivers, Apr 5, 2006
Read or order our free Connect booklets and fact sheets offering easy-to-read information about the latest cancer treatments, managing side effects and coping with cancer.
Triple Negative Breast Cancer
- Treatment Update: Breast Cancer With Highlights from the 2019 San Antonio Breast Cancer SymposiumNew!
- After a Breast Cancer Diagnosis: Questions to Ask Your Doctor
- Caregiving for Your Loved One With Triple Negative Breast Cancer
- Coping With Lymphedema
- Coping With Metastatic Breast Cancer
- Coping With Triple Negative Breast Cancer
- Diagnostic Tests for Early-Stage Breast Cancer
- Lymphedema: Finding Resources and Support
- Treatment Update: Breast Cancer With Highlights From the 2017 San Antonio Breast Cancer Symposium
- Treatment Update: Breast Cancer With Highlights from the 2018 San Antonio Breast Cancer Symposium
- Treatment Update: Metastatic Breast Cancer
- Coping With Cancer: Tools to Help You Live
- Caregiving for Your Loved One With Cancer
- Talking to Children When a Loved One Has Cancer
- Communicating With Your Health Care Team
- Understanding and Managing Chemotherapy Side Effects
- Sources of Financial Assistance
- Finding Resources in Your Community
- If You've Just Been Diagnosed
- “What Can I Say to a Newly Diagnosed Loved One?”
- Caring Advice for Caregivers: How Can You Help Yourself?
Every month, featured experts answer your questions about coping with cancer. View all questions and answers.
Triple Negative Breast Cancer
Are there any recent research findings or treatment developments for triple-negative breast cancer? With a high risk of recurrence, what is the recommended follow-up? What questions should I ask my doctor?A.
Triple-negative breast cancer has gained much attention over the past few years, but is still relatively new to researchers. Researchers have discovered that there are many variations of triple-negative breast cancer, and about 15-20% of breast cancer diagnoses in the U.S. are triple negative.
The treatment of triple-negative breast cancer does not vastly differ from other types of breast cancer, and would typically involve the options of surgery, chemotherapy, and radiation. Some of the studies being performed at this time are on already existing chemotherapies; others are on newer medications including PARP inhibitors, angiogenesis drugs, and tyrosine kinase inhibitors.
Because much of triple-negative breast cancer is under investigation, participating in a clinical trial can be helpful to advance research. Depending upon the clinical trial, a patient can join at various stages of treatment and post treatment. The Triple Negative Breast Cancer Foundation has a partnership with EmergingMed that offers a clinical trial matching service in order to make your search faster and easier. You can call them at 877-769-4827 or visit www.emergingmed.com/networks/tnbcf to speak to a clinical trial navigator.
It is very important to discuss a follow-up care plan with your oncology team. During follow-up appointments, you should discuss with your doctor any changes in your body. Typically, a follow-up plan includes physical exams, mammograms, bone health tests, and blood work. Additional follow-up may involve scans, but that is not as common. A follow-up care plan should best meets your needs and your doctor’s recommendations.
Questions to consider for follow-up visits include:
- How often are my follow-up appointments?
- Will the frequency of my appointments change over time?
- What will happen during these follow-up appointments?
- Is there anything I can do to improve my lifestyle that may directly impact my risk of recurrence (e.g., changes in nutrition, exercise, or stress levels)?
- What are common longer-term side effects of my cancer treatment, and how long might they last?
- Are there any resources to help pay for my medical bills?
- When is it medically safe to return to work, and should I perform light-duty tasks when going back?
- Where can I join a support group for post-treatment survivors?
CancerCare offers a variety of educational workshops and publications, along with supportive services for post-treatment survivors. We currently offer face-to face, telephone, and online support groups specifically for people who have completed treatment. View all of CancerCare’s post-treatment resources.
I have heard about triple-negative breast cancer, but I really don't know what it is. Could you explain?A.
Triple-negative breast cancer is a subtype of breast cancer. Although breast cancer is often referred to as a single disease, there are many types of breast cancer tumors. In fact, breast cancer can be described as a family of diseases. All breast cancers start in the breast. So, they are alike in some ways, but also can be quite different from each other.
Subtypes of breast cancer are generally diagnosed based upon the presence, or lack of, three “receptors” known to fuel most breast cancers: estrogen receptors, progesterone receptors and human epidermal growth factor receptor 2 (HER2). None of these receptors are found in women with triple-negative breast cancer. In other words, a triple-negative breast cancer diagnosis means that the tumor is estrogen receptor-negative, progesterone receptor-negative and HER2-negative, thus giving rise to the name “triple-negative breast cancer.” Because of its triple-negative status, triple-negative tumors generally do not respond to receptor-targeted treatments. Despite not having a targeted therapy as a treatment option, chemotherapy is an effective treatment. Research shows that triple-negative breast cancer may even respond better to chemotherapy than other types of breast cancer. Surgery and radiation therapy are also usually options.
Is there a way to find triple-negative breast cancer specialists? And are there specific support groups or programs to speak with women with triple-negative breast cancer?A.
When coping with a diagnosis of triple-negative breast cancer, it is important to ensure that your medical team is well-informed about the latest research and best practices. While we are unable to recommend or endorse a specific doctor, here are some suggestions for seeking out a breast cancer specialist who is experienced with treating triple-negative breast cancer.
The National Cancer Institute has designated cancer centers throughout the United States and provides information on doctors practicing in your area. You can access their online database or call them at 800-4-CANCER.
Ask your current doctor for a referral. Many people may feel hesitant to ask for a second opinion for fear of creating an uncomfortable relationship with the doctor. But be assured that a second opinion is considered a routine and necessary component of one’s health care plan. In fact, most medical professionals expect their patients to receive a second opinion.
Researching clinical trials in your area will allow you to learn which doctors are participating, and get an idea of specialists in the field. A free, confidential resource to locate clinical trials accepting women with triple-negative breast cancer is The Clinical Trials Matching Service website and helpline: 877-769-4827.
Contact the local county medical society, hospitals or breast cancer center in your area.
It is perfectly acceptable to ask doctors how many of their patients have TNBC, and how familiar they are with treating this subtype of breast cancer.
To answer your second question, getting support from other women who have experienced triple negative breast cancer can be a valuable tool to feel less alone and more empowered. Organizations such as Living Beyond Breast Cancer and the American Cancer Society provide a service called peer matching, in which you can be paired with a volunteer who had a similar diagnosis. The Triple Negative Breast Cancer Foundation has a very active online forum where people impacted by TNBC discuss various topics. There may be support groups in your area where you can connect with peers, as well. Your oncology social worker is a good resource for local referrals.
Where can I find treatment guidelines and recommendations for triple-negative breast cancer?A.
Each person’s cancer is different, and so there is no one-size-fits-all treatment for triple-negative breast cancer. New research suggests that even within triple-negative breast cancer, there are many subtypes. Therefore, the best treatment plan is one that your medical team carefully tailors to your unique situation. Generally speaking, treatment for triple-negative breast cancer commonly consists of surgery, chemotherapy (given neo-adjuvantly – before surgery – or adjuvantly – after surgery), and radiation. Even when surgery appears to successfully remove all visible cancer, chemotherapy is often given as systematic therapy, as it treats the whole body by moving through the bloodstream. Chemotherapy adds an extra layer of protection against cancer recurrence because there is a chance that tiny cancer cells could remain in the body after surgery. Triple-negative breast cancer is uniquely chemosensitive, meaning that chemotherapy is a very effective treatment for this subtype of breast cancer. Common chemotherapies for triple negative breast cancer may include an anthracycline such as Adriamycin, alkylating agents such as Cytoxan, and a taxane, such as Taxol or Taxotere. Fluorouracil (5FU) may be given as well. Often a combination of drugs, or a “chemo cocktail,” is given to disable and kill cancer cells. Genetic testing may be conducted to determine if you carry genetic risk factors for recurrence or a second cancer. There is a wealth of information on treatment for triple-negative breast cancer on the Triple Negative Breast Cancer Foundation’s website.
Clinical trials for triple-negative breast cancer should not be overlooked. Clinical trials offer the chance to try new, promising treatments before they are available to the public. Clinical trial participants are volunteers and can withdraw from the trial at any time. Trials move through three phases that analyze different aspects of a medicine such as safety, how well a treatment works for a certain type of cancer, and comparison to how well the new treatment works versus the established, approved treatment. In addition to personal benefit, clinical trials pose an opportunity to contribute to science, and help women in the future who will be diagnosed with triple-negative breast cancer. It is critical to be informed about clinical trials early on, as many trials exclude patients who have received previous treatment. Ask your medical team about clinical trials. You may also search online using BreastCancerTrials.org or The Clinical Trials Matching Service.
I strongly encourage you to speak with your medical team about why a specific treatment plan was recommended for you.
I was currently diagnosed with triple-negative breast cancer and carry the BRCA1 gene. I was wondering if you offer any assistance in travel, lodging and wig fees?A.
CancerCare offers some limited financial assistance that may be able to help with costs associated with transportation, child care, home care, or lymphedema garment costs. To determine if you are eligible and receive an application, please contact our Hopeline at 800-813-4673. Here are some additional sources of general financial assistance:
- Triple Step Towards The Cure: 424-258-0313
- The Pink Fund: 877-234-7465
- Breast Cancer Charities: 936-231-8460
If you are seeking assistance with lodging during treatment, there are some organizations that focus on providing reduced or free lodging when staying out of your area for treatment. You may want to contact American Cancer Society’s Hope Lodge program (800-227-2345), Joe’s House (877-563-7468), or the National Association of Hospitality Houses (800-542-9370).
If your treatment involves air travel, it may be helpful to contact Air Charity Network (877-621-7177), Lifeline Pilots (800-822-7972), or Corporate Angel Network (914-328-1313).
CancerCare provides wigs and breast prostheses free of charge to those in our New York City area. To request an appointment, please contact our Hopeline (800-863-4673). For those in other parts of the county, I recommend contacting your local branch of American Cancer Society as they may have a wig program. You can contact their hotline at 800-227-2345 or use the locator on their website. Also, if you haven’t already, you can ask at your treatment center if they have a wig program as many have wigs available to clients. Finally, you may be able to get wig costs covered or partially reimbursed through your medical insurance. It sometimes requires your doctor to write a prescription for a “cranial prosthesis.” If you have medical insurance, I would suggest contacting your insurance and inquiring if you have a wig benefit and how that process would work.
As you mentioned carrying the BRCA1 gene, I wanted to also note that the organization FORCE (Facing Our Risk of Cancer Empowered) provides services and supports to those impacted by and hereditary breast cancer.
I completed my main treatment for triple-negative breast cancer and am now dealing with anxiety about it coming back. I don't want to burden my family or friends and know I need help. Are there places that can help me?A.
Thank you for bringing up this very important topic; it is a concern that is very frequently voiced by individuals who have completed their treatment for TNBC. Although many women who have had breast cancer struggle with fears of recurrence, I feel that recurrence concerns are especially pronounced in the post-treatment TNBC population. Many women who have had TNBC indicate that the lack of recurrence prevention available (such as the hormonal therapies typically offered to women with hormone-receptor positive breast cancers) compounds their recurrence concerns and may bring about feelings of helplessness. I commend you for recognizing you need some additional supports at this time.
There are many organizations that can assist those who are in the post-treatment phase of TNBC. First, CancerCare offers free psychosocial supports for survivors that can include counseling, educational materials and an online support group for those who are post-treatment survivors of any cancer diagnosis. For more information about any of CancerCare’s free support services, please contact our Hopeline at 800-813-4673 or view our services online.
The TNBC Foundation offers a very active online forum for individuals in treatment as well as survivors, and can be a place to access peer support. Additionally, you may consider “peer matching”, where you can be matched to another woman who has undergone a similar experience to have one-on-one phone calls. Sometimes it can be exceedingly helpful to talk to someone else who has “been there” and understands what you are feeling. Two organizations that provide this service are Living Beyond Breast Cancer (888-753-5222) and SHARE (844-275-7427). The Young Survivors Coalition is another organization that provides resources and supports to those post-treatment, focusing on women who were diagnosed at a younger age.
Finally, some post-treatment women find that they benefit from individual counseling to address the concerns and emotions that arise after treatment ends. If you’d like to find professionals in your area that have expertise working with individuals impacted by cancer, you can call the American Psychosocial Oncology Society (APOS) at 866-276-7443. Please know that you are not alone in experiencing recurrence concerns, and that there is support available to you.
For more information, please read:
How would a negative genetic result for a triple negative breast cancer benefit the patient herself? Are there any benefits for the patient or is it only that her relatives are less likely to carry the gene?A.
Many individuals and families impacted by TNBC have questions about genetic testing and its implications. It is first important to note that today there are numerous genetic testing panels, and that the currently available genetic tests are not able to pinpoint increased risk of a specific subtype of breast cancer but rather increased risk of breast cancer in general; there is not a genetic test at this time that is looking specifically for risk of triple negative breast cancer. Triple negative breast cancers and BRAC mutations have a higher percentage of being linked, but it is also important to note that the BRAC mutation accounts for a small percentage of overall breast cancers and not all cases of TNBC are caused by a genetic mutation.
As we are a staff of social workers at CancerCare and are not medical providers, I cannot provide specific medical guidance or treatment/testing suggestions. What I can share generally is that genetic testing (including the BRAC panel and others) can potentially have a physical, emotional and financial impact on the individual being tested as well as their family members. For this reason, it is always encouraged that you speak to your treating medical team as well as a genetic counselor prior to being tested so that appropriate guidance can be provided about what the test results may mean for you and your family. Receiving a negative genetic testing result means that you do not carry specific genetic mutations that are linked to an increase risk of breast and certain other cancers, but a negative result does not mean that one will never receive a breast cancer diagnosis. If an individual diagnosed with TNBC receives positive genetic testing results, having that information may impact not only the treatment and future health decisions of that person, but can aid that individual’s children and family in making decisions about genetic testing for themselves and their own health.
This is a very important topic, and it is understandable that genetic testing may raise questions and concerns. For additional information on genetic mutations and hereditary cancers or to speak to a genetic counselor for preliminary guidance, you may want to contact FORCE (Facing Our Risk of Cancer Empowered). They can be reached by phone at 866-288-7475 or emailed at firstname.lastname@example.org.
I'm 43 years old, married and going to have a mastectomy. I'm insecure about how my body is going to look and being intimate with my husband. How can I maintain my femininity and a positive body image?A.
When it comes to changes in our bodies, no matter what a woman’s age, those changes will challenge how we see ourselves and our perception of how others see us. This can be especially true for women who have had a mastectomy or bilateral surgery since images in the media so often place a heavy emphasis on how women look. Breast reconstruction has helped many women redefine their feelings about the loss of a breast. You might want to consult with a plastic surgeon about what options are available to you. For women who do not choose reconstruction, the use of a breast prosthesis can be a good alternative. A prosthesis can give a look of symmetry; many of the newer prostheses are made of a lighter weight material and come in special forms that can be used in swimwear and night gowns. It’s important to recognize that this is a loss, and with loss comes grief. Remember that it will take time to adjust and it’s a good idea to reach out for support and guidance during this time.
Treatment for breast cancer such as chemotherapy or hormonal blockers may also have side effects that can produce early menopause, vaginal dryness and a diminished desire for intimacy. Talking with your doctor about products that can reduce symptoms of dryness or discomfort can help. Opening a conversation about your concerns with your partner is an important first step. Many people don’t understand the actual physical basis for diminished desire and feel they are being rejected.
How to Help Your Wife (and Yourself) Through Diagnosis, Treatment and Beyond (Rodale Inc.) by Mark Silver, is one book you and your partner might find helpful. In addition, you may try contacting Living Beyond Breast Cancer.
My sister has breast cancer, and now she has lymphedema as a result of her breast removal. Her therapist wants her to get a sleeve and glove. She went to be fitted and found the cost would be about $340. Medicare nor insurance will pay anything on this. Is there any funding available for this expense?A.
For women undergoing breast cancer treatment and those in the survivorship phase, lymphedema can pose new challenges at an already difficult time. Unfortunately, despite ongoing advocacy efforts, there is minimal insurance coverage for lymphedema garments including the sleeve and gloves that your sister was encouraged to obtain. For many women, the large out of pocket expense of the garments can be a significant financial challenge. There are some resources that exist to assist women in purchasing the lymphedema supplies that they need.
First, CancerCare may be able to assist with a one-time grant for the purchase of lymphedema supplies. To determine eligibility, you or your sister would call our Hopeline at 800-813-4673 and speak briefly with an oncology social worker. If eligible, a brief application would be mailed to your sister for completion.
The National Lymphedema Network offers a garment fund for women who demonstrate a significant financial need and whose physical therapists are members of their network. Your sister should ask her therapist if they are a member, and if so, additional eligibility information can be found on the website.
The All4One LympheDIVAS’s Program may be able to offer free/or reduced cost supplies for a limited number of women monthly. For more information about financial eligibility and other criteria, please see their website.
There may be other local organizations that provide assistance for lymphedema supplies. Our Hopeline social workers would be happy to explore potential resources for your sister. We can be reached Monday through Thursday from 9 a.m. - 7 p.m. Eastern Time and Fridays from 9 a.m. - 5 p.m. Eastern Time.
Magnolia Meals at Home
A meal delivery program that helps patients by providing nourishing meals to households affected by cancer. Is currently available in and around Woodcliff Lake, NJ and Andover, MA, Raleigh-Durham, NC and New Haven, CT (as well areas in New York, New Hampshire and Boston, MA). For more information please visit magnoliamealsathome.com or contact Kathy Nugent, LCSW at 800-813-4673, ext. 6809.
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Sisters Network® Inc. - A National African American Breast Cancer Survivorship Organization
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