Q. It's hard to find survivor programs or services for triple negative breast cancer. In groups I am sometimes the only one with triple negative breast cancer. Any advice?
First I’d like to say that it takes a great deal of courage to reach out like you did, and I applaud you for that. It is completely understandable to feel alone, scared and unsure when dealing with cancer. There are a lot of unknowns. It helps to know that you do not have to take this journey by yourself. I have a few recommendations, as there are a variety of options for receiving support.
CancerCare provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones and the bereaved. We can provide face-to-face counseling if you are in New York City or New Jersey areas. Nationally, we can provide telephone counseling and support groups as well as online support groups (we specifically have a TNBC Online Support Group). If interested, you can call us at 800-813-4673 for more information and to receive these services. Our helpline is staffed by professional oncology social workers who are specially trained in triple negative breast cancer.
Living Beyond Breast Cancer (LBBC) offers a support line and peer matching program. You can call 888-753-5222 or visit www.lbbc.org for more information. Through their peer matching program, they can link you one-on-one to speak with another person with triple negative breast cancer.
SHARE: For women facing breast or ovarian cancer. Their breast cancer hotline number is 866-891-2392 and website is www.sharecancersupport.org. They too offer peer matching programs.
If you are interested in joining a face-to-face support group in your community you can contact your local unit of the American Cancer Society at 800-227-2345 or visit www.cancer.org to find locations.
The Triple Negative Breast Cancer Foundation also offers supportive counseling, and they can be reached at (877) 880-TNBC (8622) or tnbcfoundation.org.
I hope this information was beneficial to you. If you need further information please call us at 800-813-4673 (HOPE)