Connect with other caregivers of cancer patients in our free support groups led by oncology social workers.
- Lesbians, Bisexual Women and Transgender Cancer Survivors Support Group (New York City)
- SAGE Gay and Bisexual Men With Cancer Support Group (New York City)
Every month, featured experts answer your questions about coping with cancer including specific answers to questions asked by caregivers.
For Breast Cancer
Q. I am a lesbian and my family is not accepting of this. I recently have been diagnosed with breast cancer, and I'm really feeling the loss of having family for support. I'm not sure if it would make a difference to speak with them - should I tell my family about my diagnosis?
You took a very courageous step by disclosing your sexual identity to your family, and their rejection can feel devastating especially during times of need. It is the most natural desire to want to be accepted by the people we love, and while some homophobic reactions may be intense, there are many shades of gray. In extreme cases, disclosure sometimes results in permanently severed relationships, but the coming out experience and the reactions of loved ones can be a process that evolves over time. It is understandable that you are concerned about communicating with your family given the risk of further rejection, but you may find that family members who have difficulty accepting your lesbian identity would want to be part of your life and be able to support you given the chance.
It is important that you seek out support from family, friends, co-workers, and healthcare professionals. CancerCare’s professional oncology social workers are here to help by linking you to practical support, education, support groups, or referrals. In addition to getting support around your cancer diagnosis, you can also receive counseling about your relationships with your family that can guide you toward the best course of action for you.
Learn more about our breast cancer services. You might also contact The National LGBT Cancer Network and The Mautner Project. Cultivating a network of support and sharing your experiences with others can be a liberating and self-affirming experience and I encourage you to explore these resources.
For Pancreatic Cancer
Q. My son's partner was recently diagnosed with pancreatic cancer and the prognosis is not good. He is very much part of our family. Our son looks very stressed and sad and sometimes is irritable and short with me, which is very unlike him. We have talked to him about getting some help but he says no one will understand because his partner is a man. What can we do?
Your son and son-in-law are both very fortunate to have your support. People in even the most devoted and long-standing gay relationships may not get the same degree of social recognition and support as straight couples. Coping with a loved one’s cancer diagnosis can be a difficult experience and is compounded when one is the primary caregiver, as it sounds like your son may be. With much of the focus on the person with cancer, the needs of caregivers can be unintentionally overlooked and this dynamic is even more likely to be present in gay relationships. Your son is having a very normal reaction to a difficult circumstance, but I feel that the emotional changes you describe could increase without professional support. It is not unusual for gay people to be concerned about being rejected or misunderstood, but there are ways to help your son connect to mental health professionals who are sensitive and open. You can contact us and speak with an oncology social worker for support and referrals to local resources.
Another point gay partners need to consider when faced with a cancer is ensuring that certain rights are addressed and attended to proactively. Gay partners have encountered barriers to areas that others may take for granted such as hospital visitations and medical decisions. Some states address concerns such as these by recognizing domestic partnerships, but there are other measures that can provide certain protections such as having your son-in-law prepare a health care proxy, living will, or power of attorney. These documents will help facilitate communication with health care providers. To locate free legal services to help with these protections, please visit http://www.lawhelp.org.
Although you write out of concern for your son, a cancer diagnosis impacts the entire family and I hope you won’t ignore your own need for support. CancerCare services include telephone and online support groups for people with cancer and their loved ones and we also offer a number of publications.
Family Caregiver Alliance
Mautner Project - The National Lesbian Health Organization
866‑MAUTNER (628‑8637), mautnerproject.org
National Coalition for LGBT Health
National LGBT Cancer Network
212‑675‑2633 , cancer-network.org
Services and Advocacy for Gay, Lesbian, Bisexual & Transgender Elders (SAGE)
SHARE: Self-Help for Women with Breast or Ovarian Cancer
The Lesbian, Gay, Bisexual & Transgender Community Center
The LGBT Cancer Project