The Healthcare Challenge in Cancer
In the discussions between patients and providers regarding cancer treatment options, cost has joined safety, efficacy and evidence as factors to be considered. New decision support tools are being developed and used to support oncologists in evaluating treatment options with patients. Many of these tools however, are shaped through the eyes of payers and providers, and don’t include the priorities and preferences of patients and their families.
Patients are required to make life-defining treatment choices based on criteria they may not understand and which may not reflect what is important to them regarding life, quality of life and overall well-being, both short and long term.
In 2016, the CancerCare Patient Access and Engagement Report laid the groundwork for understanding the true ‘costs’ – physical, emotional, financial – of the cancer experience for patients and families nationwide. Now, CancerCare will build on this report with a multi-pronged, long-term initiative intended to change the national healthcare landscape, change the dynamics of individual patient decision-making, and change the experience for patients and families affected by cancer.
A Program of Action
The CancerCare Patient Values Initiative™ intends to reframe the national healthcare policy dialogue to include what is important to patients and their families, and to make sure that patients’ values and priorities are incorporated into treatment decision making. With guidance from an Advisory Board of esteemed experts from across the oncology community, the initiative will conduct stakeholder research to inform the development of new resources that can be easily used by patients and clinicians to capture patient priorities during treatment planning.
View Initiative Advisory Board
- Amy Berman, BSN, RN, LHD Senior Program Officer, The John A. Hartford Foundation; Patient Advocate and Survivor
- Randy Burkholder
Vice President, Policy and Research, PhRMA
- Patricia J. Goldsmith
Chief Executive Officer, CancerCare
- Patti Jewell, MPA
Senior Director, Public Affairs, Oncology, Pfizer; CancerCare Board of Trustees
- Sandra Kurtin, PhDc, ANP-C, AOCN
Hematology/Oncology Nurse Practitioner, The University of Arizona Cancer Center; Assistant Professor of Clinical Medicine, Adjunct Clinical Assistant Professor of Nursing, The University of Arizona
- Susan M. Love, MD, MBA
Chief Visionary Officer, Dr. Susan Love Research Foundation
- Cynthia Floyd Manley
Director, Content and Social Engagement, Strategic Market Engagement, Vanderbilt University Medical Center
- Edith Mitchell, MD, FACP
Clinical Professor of Medicine and Medical Oncology, Department of Medical Oncology; Director, Center to Eliminate Cancer Disparities; Associate Director, Diversity Affairs, Sidney Kimmel Cancer Center at Jefferson; Immediate Past President, National Medical Association
- Hector Nuñez
Patient Advocate and Survivor
- Lee Schwartzberg, MD, FACP
Executive Director, West Cancer Center
- Ellen Sonet, JD, MBA
Chief Strategy and Alliance Officer, CancerCare
- Mike K. Wong, MD, PhD, FRCPC
Professor of Medicine, Melanoma Medical Oncology, The University of Texas MD Anderson Cancer Center
- Mike Zincone
Director/Team Leader, Advocacy and Professional Relations, Pfizer Oncology