Carcinoid Tumor

Counseling

Oncology social workers help you cope with the emotional and practical challenges of carcinoid tumor. Contact us at 800‑813‑HOPE (4673) or info@cancercare.org.
Learn more about counseling.

Resource Navigation

Learn more about how CancerCare Resource Navigation can help you address barriers to care.

Financial Assistance

Find resources and support to manage your financial concerns. Limited assistance from CancerCare^® is available to eligible families for cancer-related costs.

Support Groups

Connect with others in our free support groups led by oncology social workers.

Online

• Carcinoid and Neuroendocrine Tumor Patient Support Group

Community Programs

Learn about and view the full calendar of our free community programs.

Specialized Programs

CancerCare offers specialized programs to address specific populations and concerns.

Coping Circle Workshops

Virtual educational and supportive workshops led by oncology social workers and qualified co-facilitators. These workshops cover numerous topics and are offered in English and Spanish.

Connect Education Workshops

Listen in by telephone or online as leading experts in oncology provide up-to-date information about cancer-related issues in one-hour workshops. Podcasts are also available.

We currently do not offer a Carcinoid Tumor specific workshop. You may be interested in these general-interest workshops:

Upcoming Workshops

General Topics

• Challenges Young Adults with Cancer Face: Coping Tips, Jun 9, 2026
• Clinical Trials: How They Transform the Treatment of Cancer, Jun 16, 2026

Podcasts

General Topics

• Managing Eye and Vision Changes Related to Cancer Treatments, Apr 27, 2026
• Coping with Cancer, Apr 15, 2026
• Current Perspectives on Cancer Survivorship, Mar 10, 2026
• Veterans and Cancer: Unique Challenges, Mar 6, 2026
• Taking Your Pills on Schedule: Why It Is So Important in Managing Cancer, Jan 27, 2026
• Addressing the LGBTQI+ Health Disparities Gap, Jun 25, 2025
• Children as Caregivers for a Loved One with Cancer, Jun 24, 2025
• Diverse Populations Participating in Decisions About Your Care with Your Health Care Team, Jun 17, 2025
• Current Perspectives on the Future of Cancer Research, Jun 5, 2025
• Understanding How Health Care Disparities May Influence Your Cancer Treatment and Care, Jun 2, 2025
• Cancer & the Workplace: Understanding Your Legal Protections, Apr 30, 2025
• Understanding the Cost of Care & Your Health Care Coverage, Apr 23, 2025
• Managing Eye and Vision Changes Related to Cancer Treatments, Apr 21, 2025
• Trends in Oncology & Treatment Planning: A Guide to Getting the Best Care, Apr 16, 2025
• Understanding the Different Names for Biomarker Testing and Their Role in Selecting the Best Treatment for You, Mar 10, 2025
• Understanding the Important Role that Biomarker Testing Plays in Informing the Treatment of Cancer, Mar 3, 2025
• Clinical Trials: How They Transform the Treatment of Cancer, Feb 4, 2025
• Understanding Treatment-Related Skin Toxicity: Practical Tips to Cope with Rash, Dry/Itchy/Peeling Skin and Nail Changes, Jan 17, 2025
• Cancer in the Workplace, Health Insurance, Finances and Returning to School, Dec 13, 2024
• Challenges Young Adults with Cancer Face: Coping Tips, Dec 6, 2024
• Chemotherapy: Novel Approaches to Prevent and Manage Gastrointestinal Treatment Side Effects, Nov 22, 2024
• Caregiving for Your Loved One with Cancer, Sep 23, 2024
• Chemotherapy: Novel Approaches to Prevent and Manage Gastrointestinal Treatment Side Effects, Feb 16, 2024
• Young Adult Survivorship: Fertility, Sexuality and Intimacy, Feb 9, 2024
• Joys and Challenges of Pets in Your Home When You Have Cancer, Apr 8, 2019

Publications

Read or order our free Connect booklets and fact sheets offering easy-to-read information about the latest cancer treatments, managing side effects and coping with cancer.

Carcinoid Tumor

• Coping With Stomach Cancer

General Topics

• Coping With Cancer: Tools to Help You LiveNew
• Caregiving for Your Loved One With Cancer
• Talking to Children When a Loved One Has Cancer
• Communicating With Your Health Care Team
• Sources of Financial AssistanceNew
• Finding Resources in Your CommunityNew
• If You've Just Been Diagnosed
• What Can I Say to a Newly Diagnosed Loved One?
• Advice for Caregivers: How Can You Help Yourself?

Ask CancerCare

Every month, featured experts answer your questions about coping with cancer. View all questions and answers.

Carcinoid Tumor

• Q.

  I have a very rare cancer, and it is called well-differentiated neuroendocrine tumor (carcinoid). I have been told there is not a cure for this type of cancer, but I am hoping to find a support group (or people to chat or do activities with). Can you help me?

  A.

  A support group can be a wonderful way to find social connection, resources and information from others going through similar experiences. Although your cancer is rare, there are still excellent supportive resources available.

  CancerCare offers a free, private online support group for individuals in treatment for carcinoid and neuroendocrine tumors This message-board style group is moderated by an oncology social worker, and is available 24/7 during the group cycle. To learn more and register, please visit the support group page.

  There are other organizations that provide excellent support as well. The Carcinoid Cancer Foundation has patient forums in addition to other services like resource referrals, education and advocacy. The Rare Cancer Alliance offers patient forums geared towards those with rare conditions; they offer one for those diagnosed with carcinoid tumors and one for those with neuroendocrine tumors. Similarly, the Association of Cancer Online Resources (ACOR) hosts groups through an email listserv, including a Carcinoid Cancer Group.

  You may also want to explore “peer-matching” services offered by organizations like Cancer Hope Network, Imerman Angels and WhatNext. They work to match patients with one-to-one support provided by those with a similar cancer history.

  Finally, CancerCare offers a number of general face-to-face, telephone, and online support groups that may meet your needs. To learn more about our current offerings and how to register, you can contact our Hopeline at 800-813-HOPE (4673) to speak to one of our professional oncology social workers.

  Answered by
  Caroline Edlund, MSW, LCSW-R

  ∞ Direct link to this question

  Tags:

  carcinoid tumorrare cancersneuroendocrine tumorssupport groupspatient and peer matching

Featured Resource

Magnolia Meals at Home

A meal delivery program that helps patients by providing nourishing meals to households affected by cancer. Is currently available in and around Woodcliff Lake, NJ and Andover, MA, Raleigh-Durham, NC and New Haven, CT (as well areas in New York, New Hampshire and Boston, MA). For more information please visit magnoliamealsathome.com or contact Kathy Nugent, LCSW at 800-813-4673, ext. 6809.

Stories of Help and Hope

Read inspiring personal accounts from people affected by cancer and the ways they've found to cope.

• Greta S., Diagnosed with carcinoid cancer (NETS)