A diagnosis of lung cancer can leave you and your loved ones feeling uncertain, anxious and overwhelmed. There are important treatment decisions to make, emotional concerns to manage, and insurance and financial paperwork to organize, among other practical concerns.

It is helpful to keep in mind that there are many sources of information and support for people coping with lung cancer. By learning about this diagnosis and its treatment options, communicating with your health care team, and surrounding yourself with a support network, you will be better able to manage your lung cancer and experience a better quality of life.

Understanding your diagnosis and treatment plan

Lung cancer occurs when the cells in the lung begin to change and grow uncontrollably, forming a tumor (also called a lesion or a nodule), which can be either cancerous or benign. The main types of lung cancer are small cell lung cancer (SCLC) and non-small cell lung cancer (NSCLC). Subtypes of non-small cell lung cancer are categorized based on the type of cell that the cancer originated in, and include adenocarcinoma, squamous cell carcinoma and large cell carcinoma. The type of lung cancer that you have is an important factor in determining which treatments may work best for you.

There are a wide range of treatments for lung cancer. Chemotherapy and radiation are the main treatment options for people with small cell lung cancer. Surgery is rarely used for patients with small cell lung cancer and is only considered for patients with very early-stage disease. Treatment options for non-small cell lung cancer include surgery, chemotherapy, radiation, targeted therapies and immunotherapy. If treatment is necessary, ask your health care team to recommend reliable publications and websites to learn more. Knowing what to expect can help you feel more in control.

The importance of communicating with your health care team

Because lung cancer is a complex condition with complex treatment options, good communication between you and your health care team is key. Your oncologist, nurses, and other members of your health care team work together to treat your lung cancer. Since medical appointments are the main time you will interact with your team, being as prepared as possible for these visits is important. It will help ensure that you understand your diagnosis and treatment, get answers to your questions, and feel more satisfied with your overall care. Read CancerCare’s fact sheet, “‘Doctor, Can We Talk?’: Tips for Communicating With Your Health Care Team,” to learn how you can communicate more effectively with your heath care team.

Finding Resource

While lung cancer can present many challenges, keep in mind that you do not need to cope with this diagnosis on your own. Your friends and family are important sources of strength and support. There are also many local and national support services available to assist you.

Financial Assistance. There are many organizations that provide help with medical billing, insurance coverage, and reimbursement issues. There is also financial assistance available to help people who cannot afford the cost of their medications. Good places to start your research are the websites of the Cancer Financial Assistance Coalition (www.cancerfac.org) and the Partnership for Prescription Assistance (www.pparx.org).

Benefits and Entitlements. Local and county government agencies can give you information on Social Security, state disability, Medicaid, income maintenance, the Low Income Heating Energy Assistance Program (LIHEAP), and food stamps. Check your local phone directory for listings.

Housing/Lodging. The Hope Lodge of the American Cancer Society, the National Association of Hospital Hospitality Houses (www.nahhh.org), and other organizations provide temporary lodging for families of a patient who needs to travel far from their home for treatment. Joe’s House is a nonprofit organization that offers an online database with lodging information near cancer treatment centers across the U.S. To learn more, visit www.joeshouse.org.

Getting Emotional Support

Adjusting to and finding ways to cope with a lung cancer diagnosis is an important part of healing, along with treatment. There are many organizations, such as CancerCare, that provide support services to help people affected by cancer. Individual counseling is available to help you learn ways to cope with the emotions and challenges raised by your diagnosis. Support groups can connect you with other people in a similar situation in a safe, supportive environment. Cancer affects the whole person and their loved ones, so it’s important to create a support network as part of managing your care.

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This fact sheet has been supported by a grant from Genentech, Bristol-Myers Squibb, and by an independent educational grant from Merck & Co. Inc.

Last updated April 11, 2016

The information presented in this publication is provided for your general information only. It is not intended as medical advice and should not be relied upon as a substitute for consultations with qualified health professionals who are aware of your specific situation. We encourage you to take information and questions back to your individual health care provider as a way of creating a dialogue and partnership about your cancer and your treatment.

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